tag:blogger.com,1999:blog-23136554.post4412961589674853012..comments2016-12-19T01:49:42.050-08:00Comments on Caitlyn's Family: How do you make it through the Holidays?Rebeccahttp://www.blogger.com/profile/07083975974025991852noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-23136554.post-76092024717529829982008-12-10T20:52:00.000-08:002008-12-10T20:52:00.000-08:00A search OT recommended chewlry brought me to your...A search OT recommended chewlry brought me to your blog. I read the entry at the top of the page thinking I was being connected to your entry for chewlry, but instead I find my self leaving you with what I hope will be encouragement. My most cherished Christmas morning was when I was five. Sitting beneath the twinkling lights was an unwrapped doll. She didn't need paper or bows to make her special. Just because she was there she was special. Don't give into the world of marketing that brain washes society into thinking you have to wrap, you have to make your gift "presentable". We've been told to care about the paper. Our girls don't care about the paper. And last... it's not about the presents, it's about God's presence. Well I'm off to find chewlry for an unwrapped stocking stuffer :) I hope you find peace with Caitlyn's Christmas and not what society tells you Christmas should be.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23136554.post-59463493009318744142008-12-10T05:37:00.000-08:002008-12-10T05:37:00.000-08:00Wow! I couldn't have stated it better. I feel exac...Wow! I couldn't have stated it better. I feel exactly the same way you do. My little one never made it to any stage; we are still waiting. That would be the absolute most wonderful Christmas gift of all - for her to do something other than sit in her chair all day looking blank...:( However, I cherish each day she is with us and draw so much strength from her. A very special Merry Christmas to you and your family and especially to Caitlyn!Anonymoushttps://www.blogger.com/profile/02206495000576584058noreply@blogger.comtag:blogger.com,1999:blog-23136554.post-4975761258458237932008-12-09T14:45:00.000-08:002008-12-09T14:45:00.000-08:00I keep Sarah in her bed until all the paper unwrap...I keep Sarah in her bed until all the paper unwrapping is done by her brothers--the sound of the tearing paper hurts her ears.<BR/>Holidays are hard too, with all the noise of the relatives-also too much for Sarah. She spends a lot of time in the bedroom watching her music dvds. She is happy with these solutions. It is hard, for sure.lesleyhttps://www.blogger.com/profile/09501503992952033631noreply@blogger.comtag:blogger.com,1999:blog-23136554.post-33929173955804402832008-12-09T06:22:00.000-08:002008-12-09T06:22:00.000-08:00Christmas is perhaps the hardest for me too! Befo...Christmas is perhaps the hardest for me too! Before diagnosis, everyone always said, "she'll be able to open presents next year" but now we know differently so i had the same discussion about wrapping paper! Hang in there and do whatever makes your sweet little family happy! Despite the pain Rett causes, it leaves us thankful for our girls' abilities and for each other. Hugs!Karlie Gracehttps://www.blogger.com/profile/10967734276821475106noreply@blogger.comtag:blogger.com,1999:blog-23136554.post-38390501782273114822008-12-09T05:01:00.000-08:002008-12-09T05:01:00.000-08:00Hugs, Rebecca! I know exactly how you feel. But ...Hugs, Rebecca! I know exactly how you feel. But like you said, you should be so proud of her for what she can do not the other way around. <BR/>XOXO from your Alabama family!Carrie and Averyhttps://www.blogger.com/profile/14047033694894816381noreply@blogger.comtag:blogger.com,1999:blog-23136554.post-68629004534124382272008-12-09T04:28:00.000-08:002008-12-09T04:28:00.000-08:00Yes, Christmas is a tough one....and birthdays!But...Yes, Christmas is a tough one....and birthdays!<BR/><BR/>But we are wishing you a very Merry Christmas an hoping for a wonderful days filled with smiles and love for Caitlyn!<BR/><BR/>We love you guys!Kellyhttps://www.blogger.com/profile/13680795280261614317noreply@blogger.com