tag:blogger.com,1999:blog-23136554.post8167027780535655726..comments2016-12-19T01:49:42.050-08:00Comments on Caitlyn's Family: I hate Rett Syndrome--kind of deep, grab a tissue!Rebeccahttp://www.blogger.com/profile/07083975974025991852noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-23136554.post-62075128526086700192008-09-29T17:09:00.000-07:002008-09-29T17:09:00.000-07:00Rebecca, tell Caitlyn that Brooklyn's Grammy reads...Rebecca, tell Caitlyn that Brooklyn's Grammy reads in bed with a flashlight nearly every night...we never get too old. Unfortunately, the reason I do is because Pappy goes to bed before I do and is asleep. I HAVE to read a little bit to get to sleep! Keep up the fun!<BR/><BR/>Love, <BR/>Brooklyn's GrammyGrammyhttps://www.blogger.com/profile/00946720473673992315noreply@blogger.comtag:blogger.com,1999:blog-23136554.post-46992462479623749102008-09-29T05:00:00.000-07:002008-09-29T05:00:00.000-07:00I can feel the pain and struggle in everyone of yo...I can feel the pain and struggle in everyone of your words......yes we ALL HATE Rett SYndrome. I think that is one thing ALL of us have in common. Another amazing thing is the amount of love God gave us for our girls and the patience we are given in our tearful moments. I often wonder what I will say when Brooklyn catches me in a teary day.....I am still not sure. Up until now I have escaped that moment. There will always be those days when it seems like yesterday. There will always be boxes to decorate and graphs to chart. We do our best and know that there are other moms like me thinking abot you and praying for you and also praying for a CURE and working hard daily and raising money for that cure. I dream of a day when our girls do not have to deal with Rett Syndrome. I have to believe that day is out there.<BR/>I wish I could give you a GREAT BIG HUG....That would be one nice thing - If we all lived closer to be physical support for each other.....but since distnce is sperating us know that I am hear for you to talk, cry, yell, or laugh anytime you need. I am just a phone call away!<BR/>PS, Reading with a flashlight sounds fun!!!!Brooklynhttps://www.blogger.com/profile/11930568366936897803noreply@blogger.comtag:blogger.com,1999:blog-23136554.post-72307043562188527662008-09-29T04:53:00.000-07:002008-09-29T04:53:00.000-07:00see that was a good ending! That is awesome that ...see that was a good ending! That is awesome that Caitlyn can turn the pages! You should be so proud of her. <BR/>I agree though, it is the most mundane, simple tasks that make me the most sad! <BR/>Today is a new day, Keep your head up! XOXOXOCarrie and Averyhttps://www.blogger.com/profile/14047033694894816381noreply@blogger.com