Every now and then, we get the horrible news. Somewhere in this world, God has chosen a young girl/boy to join him while they are still young. It is never easy to hear. Sometimes they are young, just starting out in their journey...sometimes they are a little older than your own, and you think "that is only a couple of years away"...Or sometimes they are older, and you try to imagine that far away. Age doesn't matter, it is the reality that hits like a ton of bricks. It is the reality that according to many of the doctors, they are living on borrowed time. We try so hard not to think about it. We live in the moment, think that the disaster will never strike our family. Truth is, when it strikes the family on the other side of the world, it has hit home. We are all family joined by two simple words: Rett Syndrome. The devastation of a diagnosis has brought us all together as family. When the disaster strikes one of our own, we can only wonder if the others are on borrowed time. This past week, it happened again. Rett Syndrome has claimed another life. We shed a tear, face reality, and say a prayer. We pray that a cure is found before another life is taken. We hug our kids, and thank God they are here, while we cry for the family that lost one of their own. The devastation must end. We need our cure.
If Rett Syndrome has ever entered the life of someone you know and love, please consider making a donation to the International Rett Syndrome Foundation. With your help, we can make this harsh reality of thing of the past. With your help, we can think about the future, and say farewell to Rett Syndrome. Don't know what to get someone for Christmas? Why not make a donation in their name and take us one step closer to a cure.
Caitlyn thanks you.