Saturday, June 24, 2006

It's been awhile

I have been playing with the picture software. I found this cool cartoon effect! The bottom picture is before, and the top one is after! Enjoy!

It's been awhile since I posted, so I figured I'd update everyone on how we're doing. Everything is really going well...Caitlyn is on a two week break from school. She'll start back on July 10 for the summer session. She only gets to stay until her birthday, which is August 5! (yes, our baby is almost 3!!! She is doing well. We haven't noticed any more seizures as of now. (That doesn't mean she isn't still having small ones.) Her neurologist did say that the EEG came back abnormal. She will remain on the medication for now, and we go back in on July 11. I will definitely post more after that. We were sad to find out in June that her speech therapist was moving on. We have been so pleased with what Jenny has done for Caitlyn! So Caitlyn will have a new therapist for summer, and then change to another one in September when school starts!

I decided this week that I don't take enough pictures of Caitlyn! I'm going to start taking more pictures, and will definitely post some on here! She is growing so fast. Over three feet tall, and 30lbs! We wouldn't mind a little bit of weight gain, but she's still eating, and that's what is important! Well, that will be all for now...

Saturday, June 10, 2006

Stroll and Roll for Rett Syndrome!

Last weekend we went down to Puyallup for the Rett Syndrome Research Foundation Strollathon. We had a great time! Team Caitlyn brought in just under $2000!! I was amazed at all the support we received! Caitlyn was a little under the weather, but still enjoyed herself. My sisters family, Marsha, Jason and Trinity; my brother's wife Thomasina (Jim had to go to the democratic conference.); Caitlyn's grandparents and our best friend Kelli, and her son Jaymes all came out to walk with us. We all had a really good time! Kelli and I bought some raffle tickets, and I got a 1 hour massage, and 2 tickets to the flight museum! She got a bunch of stuff as well! Eric and I were a little nervous about seeing other families, but it ended up being a great experience! We will also be attending the Northwest Rett Syndrome Association conference in August. We are really excited for that!

Thanks again to all of those who supported us financially and emotionally for our walk!

Friday, June 02, 2006

Caitlyn had her EEG on May 31st

On Wednesday, my mom and I took Caitlyn up to Children's Hospital at Providence for her EEG. She had to go in sleep deprived...Imagine in your mind an almost 3 yr old sleep deprived...She actually did great! The lady let Caitlyn just lay there while she put marks on her head. Then, Caitlyn's arms had to be wrapped up tight with a sheet so that I could hold her head still while the Tech. put he electrodes on her head. Caitlyn loves her hands, and did not like having them wrapped at all! She did put up with it tho. Then the test started. Caitlyn got to watch Barney, and we waited. They really wanted her to fall asleep, but she was definitely fighting it! She never did go to sleep all the way. After the scan, the Tech. said that depending on the doctor, they may want to repeat it. She said that Caitlyn entered a drowsy state about 5-6 times. Since she was fighting it, she kept pulling herself out of the drowsy state. The Tech. said that whenever Caitlyn would almost be asleep, something showed up on the scan, but since she never fully fell asleep, we don't know if anything would have come from it. We will find out the results from the doctor in a week or two..I will post more about it then.

Tomorrow is the Stroll-a-than in Puyallup to raise money for the Rett Syndrome Research Foundation! We are overwhelmed with emotion from the generous response we have received! I will post after the walk, hopefully with some pictures, so everyone can see how it went! We're hoping for good weather!