Well, Caitlyn's seizures have been increasing again. The new neuro (who is now the old neuro...he retired) upped her medication in August. Her control remained good until about 2 1/2 weeks ago. They started again slowly, about 1 every few days, and picked up from there. Today we are at 3-4 a day. This past Monday was not a good day. Caitlyn had 4-5 seizures, the last one causing her knees to buckle and fall to the floor hitting her head. This of course caused us all to jump up and make sure she was fine and she was.
I called her neuro on Tuesday and then again to follow up, only to find that the new neuro had retired, (hence him now being the old neuro.) So the nurse said she would talk to the replacement neuro and see what he wanted to do. The crazy guy decided to subject an active 4 yr old to a 5 DAY video EEG. This is absolutely insane if you ask me! But, Eric and I agreed we would give this new guy a try before we hunted for another change in doctors. So, we'll try anything to figure out these seizures and have control again.
So the big day is December 10th! We will go in at 7:30 am and not come out until Friday the 14th! Please pray for Caitlyn during this time...and everyone's sanity!
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Oh my gosh!
I can't even imagine a 5 day EEG. I actually did not know there was such a thing. I will be praying for ALL OF YOU during those five days! I guess we do what we can to figure out these crazy seizures! I hope you all can get some answers. Hang in there!
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