Home Sweet Home

We got discharged today after just one night!!! Caitlyn had a few seizures yesterday, so the doctor got to see exactly what was going on. The official report is they are indeed seizures. This EEG showed generalized seizures instead of partials. So that has changed since her last EEG in May of 2006. This means that the seizure is effecting her whole brain instead of just a localized part. So we will up her medication once again, and see what happens. The doctor said to be prepared with high calorie foods, as the medication increase could suppress Caitlyn's appetite. Every bite matters, once again! We have started adding Nestle Table Cream to her food, and will continue to get the higher calorie choices for yogurt and other foods.

It is so hard to cook for a child who requires high fat/high calorie foods when you are trying to eat low fat/low calorie things! We will do our best.

Thank you everyone for thinking about us this week! We are all very happy to be going to bed in our own beds tonight! (especially me! roll-a-way cots are not comfortable in any way!)

Tomorrow is the big day

Tomorrow is the big day. We go down to the hospital to check in by 7am. It was 7:30, but silly me, I forgot to send the pre-registration stuff in! Caitlyn and I will leave the house at 6am to account for the anticipated traffic. Please keep us in your thoughts and prayers this week. The lady from the doctors office said to prepare for 5 days, but that if Caitlyn does what they need we'll get out sooner. So, Caitlyn if your listening, if there was ever a good time for seizures, it's tomorrow! I won't have Internet access while I'm there, so I will update when we get out or Tuesday evening when I come home to sleep. Tuesday evening will be daddy's night to stay down there.

I'll leave you with a picture from yesterday. This is Caitlyn caught in the act of NOT napping...(of course during nap time.)