We got discharged today after just one night!!! Caitlyn had a few seizures yesterday, so the doctor got to see exactly what was going on. The official report is they are indeed seizures. This EEG showed generalized seizures instead of partials. So that has changed since her last EEG in May of 2006. This means that the seizure is effecting her whole brain instead of just a localized part. So we will up her medication once again, and see what happens. The doctor said to be prepared with high calorie foods, as the medication increase could suppress Caitlyn's appetite. Every bite matters, once again! We have started adding Nestle Table Cream to her food, and will continue to get the higher calorie choices for yogurt and other foods. It is so hard to cook for a child who requires high fat/high calorie foods when you are trying to eat low fat/low calorie things! We will do our best.
Thank you everyone for thinking about us this week! We are all very happy to be going to bed in our own beds tonight! (especially me! roll-a-way cots are not comfortable in any way!)
3 comments:
Rebecca,
That is SO GREAT! Not that she is having to up her meds but that you are HOME already. What a blessing! I could not even imagine FIVE days. We will be praying for you guys.
Love,
Kelly & Brooklyn
I'm so glad you're home and the DR's got the info they needed so quickly! We're all still thinking of you. Miss you!
Ok, no pressure but we want more pictures of Caitlyn :)
Love from Indiana...
Kelly and Brooklyn
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