This picture really doesn't do the "rash" justice. But I wanted to put it out here for other families incase they see something similar on the faces of their daughters with Rett Syndrome. The school made us take Caitlyn to the doctor to see if the rash on her face was Chicken pox. The doctor said no it was not, but diagnosed her with Folliculitis. The way her Ped. described it was what usually in children it is seen in the diaper area caused by moisture build up and friction. Well, when your daughter has Rett Syndrome and never has dry hands, and chronically rubs her face, you end up with this condition on the face! And once you have a few spots it spreads. Caitlyn looks like a poor teenager going through puberty. Because of the widespread of it all over her face, she is being treated orally. Hopefully it will clear up. It is very possible that this is what she had last June when we thought she had the chicken pox. I just wanted to let others know about this condition in case you see it too. It isn't chicken pox and it IS treatable![what you can't see in the picture is that Caitlyn and mommy are also fighting Strep throat.]
3 comments:
Awwww man. I hope BOTH of you get to feeling better REAL soon. I have to say that yo uare still SO cute even with that horrible rash over your face.
Love from Indiana!!!
Poor thing! My daughter does not have Rett's but whatever mystery she has it is incredibly similar, she has been tested several times by different doctors and several different variations of the test. Anyway, my Lily constantly sucks her had and last summer she got a bad case of imatigo from all that. It was a mess too, but mostly all around her mouth.
Poor Caitlyn! I hope that clears up soon!
Oh my gosh!! I can't believe how much Caitlyn looks like you! It was such a pleasure meeting you at the conference and i'll be starting Karlie's page soon! I'm excited to learn more about you and Caitlyn and i'll be praying that her school issues work out the way you want them to. Actually, i know they will, b/c you're a determined mommy, and unstopable when it comes to doing what is right for your precious baby girl! Much love, Kim
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