SSI.......

What a day! That's about all I can say. So, if you are another parent with a special needs child, you know may know something about SSI. Well, we were sitting around this morning thinking about bills and such, so Eric (daddy) called Caitlyn's social worker with the Social Security Administration to find out how much her check was going to be at the end of the week. At which time her case worker ever so kindly (really, she is a nice lady, and we know it's not her fault) informed us that we were no longer receiving benefits for Caitlyn. That means as of August 31 she wont have any health insurance. It also means that we are going to have to figure out a way to come up with rent money because she wont be getting a check this week! You may be wondering "why on earth have they cut off your benefits?" Well, the reason we received is...There is this wonderful thing set up for disabled people so they can collect benefits while the Social Security Administration makes their final decision. It is set up so there is no hardship on families while SSA researches the claim and gets all the info they need. This is where our benefits have been coming from. We were told today that we have reached the end of the 6 months. Our case worker doesn't know why they haven't made a final decision, all she knows is she doesn't have record of one, therefore we cannot receive payment, and Caitlyn wont have health insurance next month.
It is common for SSI to want to do there own exams and such, which I totally understand. The thing is we have not received any formal contact or any request for more information from anyone. This is such bull!!!! (Can you tell it's just a tad frustrating to us?)

Now for a little good news. Caitlyn and I had a wonderful day today! We went and hung out at Grandma's house again so that I could type up a letter and fax it to get something started. She was so well behaved! Didn't get into anything in Grandma's office, just sat on the little couch looking out the window. We had a "picnic" on the living room floor. We stayed a little bit later that last time, then it was off to catch our bus! Caitlyn really loves riding the bus! We decided to stop off at McDonalds with our last $8 bucks for an early dinner. Aside from throwing her head back on the seat and bumping it which upset her, she was great at McDonalds! Then back to the bus and home we came. She passed out at 7:30 tonight! I love days like today that are so happy and perfect!